A lot of people don’t like using the term “my cancer” preferring to keep the disease at a distance and avoid empowering the word. For me, it’s helpful to acknowledge that these cancer cells are my cells and completely unique to me. This cancer is not an invading bacteria or virus – it’s a part of me that I’m responsible for healing.
The Original Diagnosis
Original diagnosis October 2018: Non-small cell lung cancer (NSCLC) adenocarcinoma that’s metastasized to multiple lymph nodes in the chest and neck, the brain, and the right retina. Primary tumor is in the left lower lobe and about 5.5 cm in diameter. By definition that would be Stage 4B. Read here why I’m not so worried about that.
- EZR-ROS1 fusion
- EGFR amplification
- FGFR1 amplification.
- High PD-L1 expression.
Diagnosis & First 3 Months
- MRI – Adventist Hospital, HK – 15 October 2018 | [MRI Images Here]
- Blood Test Results – Adventist Hospital, HK
- PET-CT – Adventist Hospital, HK – 18 October 2018 | [PET-CT Images Here]
3 Month Check-In
- Brain MRI – Mayo Clinic – 30 January 2019
- PET-CT – Mayo Clinic – 30 January 2019
- Chest CT – Mayo Clinic – 30 January 2019
- Abdomen MRI – Mayo Clinic – 31 January 2019
PET-CT Summary Image
Dark areas show the radioactive glucose concentrations. The brain uses a lot of glucose, too, so ignore that. Also, the kidneys and bladder are doing their expected processing of the contrast so no worries there. The lungs and lymph nodes, however, are broken cells.
(hot stuff, amirite?)
Here I am in March 2019 looking much much better in the thoracic cavity despite spreading to the abdomen and liver. Still, clean living and crizotinib FTW.