Blood being drawn from arm
Home My StoryMedical Updates May Blood Test Results and One Month Lotlatinib Check-in

May Blood Test Results and One Month Lotlatinib Check-in

by Maggie Jones

Aced it, baby.

Yesterday’s blood test confirmed what we already knew. My tumor markers dropped from 438 and 2509 to 51 and 174, respectively, since those dark, pre-lorlatinib days.

Blood tumor markers over time - May update
normal is CA-125 ≤ 35 and CA-19.19 ≤ 26

Side effect-wise: heart is great; liver function continues to disappoint but remains steady; cholesterol is off the charts (400 – yikes!). It’s a known side effect of this medication.

My oncologist agreed that I can stay off statins until the next blood test in case it was a fluke. Since I follow a vegan diet except for daily fish oil, the occasional wild-caught salmon and 2-4 pasture-raised eggs a month, I don’t think there’s much I can do from the diet side. Skip the eggs, I guess. My research topic for the month will be weighing the pros and cons of statins against the real risk of hypercholesterolemia.

Overall I feel about as healthy as I ever have. A little more tired and achy but I could chalk that up to being 40. I just hope with all my might that 1) it’s crossing the blood-brain barrier to work its magic on my brain, and 2) lorlatinib lasts a bit longer than the crizotinib… Maybe even a few years 😉

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Peggy Lucas May 18, 2019 - 5:10 am


Maggie July 12, 2019 - 2:55 pm


Schaefer May 25, 2019 - 1:54 am
Maggie May 25, 2019 - 4:16 am

I am also without words at the awesomeness of these results! I love you, lady!

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