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Home Maggie Updates April Blood Test Results

April Blood Test Results

by Maggie Jones
6 comments

As expected because of my crizotinib resistance, blood cancer markers are still shooting up.

DateCA 125CA 19.19
Normal<= 35<= 26
16 Oct158163
16 Nov329Not tested
7 Dec5341
4 Jan2931
FebMayo does not useMayo does not use
1 Mar238766
8 Apr4382509

Still, I feel better than I have since my diagnosis.  Like, before radiosurgery I felt normal. We hiked *so much* in Japan and all I got were sore feet. For the first time since my diagnosis, there were moments when cancer wasn’t even in my thoughts.

Still, there’s no denying that my tumors are growing. At this point it’s a waiting game for the lorlatinib to see if that will help.

We don’t expect the Pfizer compassionate use delivery to come through to Hong Kong for another 4 weeks or so. A month’s worth of the Mayo-prescribed lorlatinib was only just delivered to Texas yesterday (it’s over 2 weeks late there). I’m thinking about waiting for the second month’s delivery at the end of April and then picking up both months and finishing my dental work out there.

In the meantime, my oncologist offered traditional chemo but, since I’ve been feel amazing, I decided to decline. I’m still taking crizotinib because of something called tumor drug addiction that will cause the cancer to grow even faster when I stop. I’m hooked on the Xalkori until I start the next thing.

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6 comments

Dave & Lupe April 12, 2019 - 1:40 am

More thoughts of hugs and love are headed your way, Maggie. And hopes for the new meds to get to you quicker. Your positivity is appreciated and inspiring. I wish you were closer but glad you are getting state of the art attention. You have a great husband, too! We love you,

Reply
Maggie April 12, 2019 - 1:51 am

Thank you! Your love and hugs make me feel like you guys are right here. I can’t thank you enough for the support!

Reply
Dave April 13, 2019 - 11:28 am

πŸ™‚

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Noemi M Lazo April 19, 2019 - 2:46 pm

Dear Maggie, you are in our prayers and your blog is an inspiration to all of us. You are teaching us so much on how to defeat this horrible cancer but most important how to stay strong and positive during such difficult circumstances. Sending you hugs and prayers,

Noemi Lazo

Reply
Maggie April 20, 2019 - 4:08 am

Thank you so much, Noemi! Your comments make me feel so strong and loved!

Reply
Nate Long April 23, 2019 - 9:47 am

Love you Maggie. I think of you often.

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