The PET-CT results weren’t nearly as bad as expected given the dramatic rise in tumor markers in my last blood test. Overall, it looks fairly steady since the Jan 30…
Tag:
crizotinib
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Conventional TreatmentMedical Updates
Post-Xalkori Resistance Updates
by Maggie Jonesby Maggie JonesHere’s where I am in the mad dash to find the next treatment for my quickly growing brain tumors: Plan A: Lorlatinib Trial in Boston The advantage here is free…
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Conventional TreatmentMedical Updates
March Monthly Check In: Xalkori Resistance Edition
by Maggie Jonesby Maggie JonesIt’s not really a surprise since I can see and feel my tumors grow, but my oncologist confirmed today that I’ve officially had progression while on crizotinib. I’ve developed resistance.…
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Medical Updates
Crizotinib v Lorlatinib: Disregarding the advice of some of the world’s best doctors
by Maggie Jonesby Maggie JonesBrad and I have spent the past couple of days mulling over the advice of the oncology team at they Mayo Clinic to stop taking crizotinib and move to lorlatinib.…
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Medical Updates
Mayo Clinic Update: Xalkori works great! Stop taking Xalkori!
by Maggie Jonesby Maggie JonesI just wrapped up two consecutive ten hours days at the Mayo Clinic. I’ll post an update about the entire carnival of medicine later but for now here are the…
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Recovery from the brain radiation was a little slow but I’m just about there. I’m still sleeping a lot but have started weaning myself off the anti-vomiting meds. I’d ordered…