Living with Cancer

Wow, I started this post June 2019. I’m just getting ready to publish it January 2023. Since I’m doing so fabulously it isn’t morbid at all to celebrate that my…

Medical mistakes account for over 250,000 deaths each year.[1] I was almost one of them. Here’s how to make sure you’re not. If you’ve had or are considering any type…

The most incredible, overwhelming and humbling part of sharing my story publicly has been the enormity of support, encouragement, and connection I’ve found among those who are on their own…

I realize this entire blog to date is a chronicle of the tools I’ve used to first survive, then flourish, then heal from stage 4 cancer. One year into my…

November is lung cancer awareness month. You probably weren’t aware. I wasn’t. I’ll never forget October is breast cancer awareness month after so many years of the NFL wearing pink…

I know I’ve had cancer for longer than a year – two years at least – but today is important because it’s the anniversary of the day I found out.…

It’s not so good, guys. Two consecutive months of normal tumor markers is amazing and more than I could hope for but the cost has been high – and not…

Every morning I take the lorlatinib that is keeping my cancer from growing. It has a slew of side effects including raging cholesterol so I also take rosuvastatin (a hydrophilic…

I’ve never been into birthdays but this one is kind of a big deal. I posted already about what a crazy year we’ve had. Here’s the photographic evidence of some…

Today marks exactly one year since we moved to Hong Kong. It’s been an eventful year. I started a new job. I turned 40. I was diagnosed with terminal cancer.…

Oops! I was all bragging about not losing much hair during the second round of radiosurgery but it turns out I just hadn’t found the spot. I went to get…

Five weeks in and the side effects I’m experiencing from lorlatinib are so much better than those I experienced on crizotinib: Tiny negative impact to my memory and attention. Continued…