Living with Cancer

Wow, I started this post June 2019. I’m just getting ready to publish it January 2023. Since I’m doing so fabulously it isn’t morbid at all to celebrate that my …

Medical mistakes account for over 250,000 deaths each year.[1] I was almost one of them. Here’s how to make sure you’re not. If you’ve had or are considering any type …

The most incredible, overwhelming and humbling part of sharing my story publicly has been the enormity of support, encouragement, and connection I’ve found among those who are on their own …

I realize this entire blog to date is a chronicle of the tools I’ve used to first survive, then flourish, then heal from stage 4 cancer. One year into my …

November is lung cancer awareness month. You probably weren’t aware. I wasn’t. I’ll never forget October is breast cancer awareness month after so many years of the NFL wearing pink …

I know I’ve had cancer for longer than a year – two years at least – but today is important because it’s the anniversary of the day I found out. …

It’s not so good, guys. Two consecutive months of normal tumor markers is amazing and more than I could hope for but the cost has been high – and not …

Every morning I take the lorlatinib that is keeping my cancer from growing. It has a slew of side effects including raging cholesterol so I also take rosuvastatin (a hydrophilic …

I’ve never been into birthdays but this one is kind of a big deal. I posted already about what a crazy year we’ve had. Here’s the photographic evidence of some …

Today marks exactly one year since we moved to Hong Kong. It’s been an eventful year. I started a new job. I turned 40. I was diagnosed with terminal cancer. …

Oops! I was all bragging about not losing much hair during the second round of radiosurgery but it turns out I just hadn’t found the spot. I went to get …

Five weeks in and the side effects I’m experiencing from lorlatinib are so much better than those I experienced on crizotinib: Tiny negative impact to my memory and attention. Continued …