So the Xalkori has been amazing and I’m so grateful I’m one of the ~70% of people with my mutation who are responsive. I should be able to continue progression-free …
Medical Updates
-
-
Conventional TreatmentMedical Updates
Delayed Radiation Side Effects
by Maggie Jonesby Maggie JonesI had a rough day yesterday throwing up both my Xalkori doses ($330 US down the toilet!!) and sleeping most of the day. I suspect it was a result of …
-
I’m very fortunate to have multiple known mutations in my cancer including the rare ROS1+ alteration that is so effectively treated with Xalkori. A few days ago, Brad found an …
-
Recovery from the brain radiation was a little slow but I’m just about there. I’m still sleeping a lot but have started weaning myself off the anti-vomiting meds. I’d ordered …
-
So lots of questions coming in make me realize I went pretty fast through the details of the current treatment plan. Here it is in a little more details: Radiation …
-
Whew! Last night was a rough night. I honestly don’t know what I’d do without Brad. About two hours after the treatment the nausea set in. Then the headache from …
-
The radiosurgery for my brain tumors ended up being super simple. Brad came with me and waited in the lobby for what he and the doctors reported was about 20 …
-
The day before radiosurgery I went in to image the brain tumors and make a mask that would hold my head still during the procedure. Like the PET-CT scan, it …
-
Medical Updates
Good News! My Cancer Cells Have “Significant Mutations”
by Maggie Jonesby Maggie JonesThis means they can be treated with targeted therapies and immunotherapy. Genomic Alterations Identified: EZR-ROS1 fusion, EGFR amplification, FGFR1 amplification. These make the cancer cells susceptible to some targeted therapies. …
-
Brad has been working full time to make our little apartment into a place of healing. Yesterday our bedroom furniture was delivered turning that room into a super cozy sanctuary. …
Older Posts