Medical Updates

It’s not really a surprise since I can see and feel my tumors grow, but my oncologist confirmed today that I’ve officially had progression while on crizotinib. I’ve developed resistance.…

Beginning a few days after we returned to Hong Kong things have been going a touch downhill. My dizziness, nausea, and “spells” have significantly increased and energy is way down.…

I was pretty nervous about our whirlwind trip through the US. Seattle, Albuquerque, Austin, Minnesota, Baltimore, New York, and Austin again was a pretty punishing schedule given how I was…

Our two days at the Mayo were an amazing experience. I really wish I’d taken more pictures. It all started shortly after my diagnosis when my company’s CEO took Brad…

Brad and I have spent the past couple of days mulling over the advice of the oncology team at they Mayo Clinic to stop taking crizotinib and move to lorlatinib.…

I just wrapped up two consecutive ten hours days at the Mayo Clinic. I’ll post an update about the entire carnival of medicine later but for now here are the…

Yesterday was my monthly check-in on the progress of my cancer and the damage to my body from Xalkori. The cancer markers that are tested can’t be used to diagnose…

I really can’t believe how lucky I am that my cancer has so many well-researched genetic mutations. With the number of treatments targeting these alterations, I sincerely believe that cancer…

Brad and I just returned from an amazing holiday in Thailand. We spent three nights in Bangkok and five nights in Phuket. I booked the trip before my diagnosis imagining…

According to Dr. Patrick Quillin in Beating Cancer with Nutrition, “most experts agree that everyone gets cancer about 6 times per lifetime” (Chapter 24). Your immune system can usually clear…

I know I’ve been bitching a lot about the costs of healthcare lately so I just want to take a minute to focus on what’s been totally amazing about my…

First off, how ’bout these cell phone stock photos, eh? Second, Brad and I nailed down the details on our plan for handling Xalkori and related costs moving forward. Read…