Medical mistakes account for over 250,000 deaths each year.[1] I was almost one of them. Here’s how to make sure you’re not. If you’ve had or are considering any type…
Conventional Treatment
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Conventional TreatmentMedical Updates
Being Your Own Advocate & Questioning the Details
by Maggie Jonesby Maggie JonesThis one is good. My lorlatinib instructions are to take 4 25mg tablets once per day. I thought that was weird since I know they make a 100mg tablet. What’s…
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Today is my seventh day taking lorlatinib and my fourth day back at work. I could have returned to work earlier but Good Friday and Easter Monday are public holidays…
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Conventional TreatmentMedical Updates
TKI Transition: Crizotinib to Lorlatinib
by Maggie Jonesby Maggie JonesI spent three days on the road with less than a 12-hour turnaround in Austin and arrived home last night with a month’s worth of lorlatinib. Victory! I took my…
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The prep for stereotactic radiosurgery is pretty comprehensive. It involves molding the mask, a CT scan while inside the mask, and an MRI to help map the tumors. Before all…
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Conventional TreatmentMedical Updates
Post-Xalkori Resistance Updates
by Maggie Jonesby Maggie JonesHere’s where I am in the mad dash to find the next treatment for my quickly growing brain tumors: Plan A: Lorlatinib Trial in Boston The advantage here is free…
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Conventional TreatmentMedical Updates
March Monthly Check In: Xalkori Resistance Edition
by Maggie Jonesby Maggie JonesIt’s not really a surprise since I can see and feel my tumors grow, but my oncologist confirmed today that I’ve officially had progression while on crizotinib. I’ve developed resistance.…
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Conventional TreatmentMedical Updates
Amazing Progress in the Past Month
by Maggie Jonesby Maggie JonesI was pretty nervous about our whirlwind trip through the US. Seattle, Albuquerque, Austin, Minnesota, Baltimore, New York, and Austin again was a pretty punishing schedule given how I was…
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Conventional TreatmentMedical Updates
Details on My Cancer’s Genomic Alterations
by Maggie Jonesby Maggie JonesI really can’t believe how lucky I am that my cancer has so many well-researched genetic mutations. With the number of treatments targeting these alterations, I sincerely believe that cancer…
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Conventional TreatmentMedical Updates
Delayed Radiation Side Effects
by Maggie Jonesby Maggie JonesI had a rough day yesterday throwing up both my Xalkori doses ($330 US down the toilet!!) and sleeping most of the day. I suspect it was a result of…
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So lots of questions coming in make me realize I went pretty fast through the details of the current treatment plan. Here it is in a little more details: Radiation…
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Whew! Last night was a rough night. I honestly don’t know what I’d do without Brad. About two hours after the treatment the nausea set in. Then the headache from…