Clinical Treatments

When I read Dr. Thomas Seyfried’s studies on metabolic therapies for cancer and his “press-pulse” idea, I immediately knew it was right for me. The Press-Pulse strategy involves applying constant…

Medical mistakes account for over 250,000 deaths each year.[1] I was almost one of them. Here’s how to make sure you’re not. If you’ve had or are considering any type…

July 2022 Update: It’s been almost two years since I wrote this article. I’ve been taking some version of the COC protocol (moderated based on my unique needs) for over…

In my last big post I was all fired up about the metabolic theory of cancer and my fire has only intensified. I’m so lucky that immediately on the heels…

I posted last week about the emerging metabolic approach to cancer and my faith in upcoming treatment options. Since then, Brad and I spent a delightful weekend in Hanoi. More…

This one is good. My lorlatinib instructions are to take 4 25mg tablets once per day. I thought that was weird since I know they make a 100mg tablet. What’s…

Today is my seventh day taking lorlatinib and my fourth day back at work. I could have returned to work earlier but Good Friday and Easter Monday are public holidays…

I spent three days on the road with less than a 12-hour turnaround in Austin and arrived home last night with a month’s worth of lorlatinib. Victory! I took my…

The prep for stereotactic radiosurgery is pretty comprehensive. It involves molding the mask, a CT scan while inside the mask, and an MRI to help map the tumors. Before all…

Here’s where I am in the mad dash to find the next treatment for my quickly growing brain tumors: Plan A: Lorlatinib Trial in Boston The advantage here is free…

It’s not really a surprise since I can see and feel my tumors grow, but my oncologist confirmed today that I’ve officially had progression while on crizotinib. I’ve developed resistance.…

I was pretty nervous about our whirlwind trip through the US. Seattle, Albuquerque, Austin, Minnesota, Baltimore, New York, and Austin again was a pretty punishing schedule given how I was…