When I read Dr. Thomas Seyfried’s studies on metabolic therapies for cancer and his “press-pulse” idea, I immediately knew it was right for me. The Press-Pulse strategy involves applying constant…
Clinical Treatments
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Conventional TreatmentLiving with Cancer
Post-treatment brain radiation necrosis or “My oncologist tried to kill me”
by Maggie Jonesby Maggie JonesMedical mistakes account for over 250,000 deaths each year.[1] I was almost one of them. Here’s how to make sure you’re not. If you’ve had or are considering any type…
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Clinical TreatmentsOff-Label Drugs
The COC Protocol & Meakin Metabolic for Metabolic Cancer Treatment
by Maggie Jonesby Maggie JonesApril 2023 Update: I’m thrilled to announce that Dr. Charles Meakin, my integrative oncologist and former US Medical Director of Care Oncology has opened MeakinMetabolicCare.com Not only does he continue…
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April 2023 Update: Care Oncology in the US is defunct but MeakinMetabolicCare.com has all they offered and far more! In my last big post I was all fired up about…
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I posted last week about the emerging metabolic approach to cancer and my faith in upcoming treatment options. Since then, Brad and I spent a delightful weekend in Hanoi. More…
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Conventional TreatmentMedical Updates
Being Your Own Advocate & Questioning the Details
by Maggie Jonesby Maggie JonesThis one is good. My lorlatinib instructions are to take 4 25mg tablets once per day. I thought that was weird since I know they make a 100mg tablet. What’s…
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Today is my seventh day taking lorlatinib and my fourth day back at work. I could have returned to work earlier but Good Friday and Easter Monday are public holidays…
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Conventional TreatmentMedical Updates
TKI Transition: Crizotinib to Lorlatinib
by Maggie Jonesby Maggie JonesI spent three days on the road with less than a 12-hour turnaround in Austin and arrived home last night with a month’s worth of lorlatinib. Victory! I took my…
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The prep for stereotactic radiosurgery is pretty comprehensive. It involves molding the mask, a CT scan while inside the mask, and an MRI to help map the tumors. Before all…
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Conventional TreatmentMedical Updates
Post-Xalkori Resistance Updates
by Maggie Jonesby Maggie JonesHere’s where I am in the mad dash to find the next treatment for my quickly growing brain tumors: Plan A: Lorlatinib Trial in Boston The advantage here is free…
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Conventional TreatmentMedical Updates
March Monthly Check In: Xalkori Resistance Edition
by Maggie Jonesby Maggie JonesIt’s not really a surprise since I can see and feel my tumors grow, but my oncologist confirmed today that I’ve officially had progression while on crizotinib. I’ve developed resistance.…
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Conventional TreatmentMedical Updates
Amazing Progress in the Past Month
by Maggie Jonesby Maggie JonesI was pretty nervous about our whirlwind trip through the US. Seattle, Albuquerque, Austin, Minnesota, Baltimore, New York, and Austin again was a pretty punishing schedule given how I was…
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