I had a rough day yesterday throwing up both my Xalkori doses ($330 US down the toilet!!) and sleeping most of the day. I suspect it was a result of …
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We’ve been making this fun taco salad every other weekend since I adopted this diet. It is surprisingly tasty for being low carb raw vegan. It does contain a lot …
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The first weekend after my diagnosis Brad took me to Hong Kong’s Gold Coast for a quiet weekend where we could soak in views and sit by the pool. It …
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I’m very fortunate to have multiple known mutations in my cancer including the rare ROS1+ alteration that is so effectively treated with Xalkori. A few days ago, Brad found an …
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Recovery from the brain radiation was a little slow but I’m just about there. I’m still sleeping a lot but have started weaning myself off the anti-vomiting meds. I’d ordered …
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Today is the 4 week anniversary of when I went to the hospital for vision anomalies and found out that I had secondary retina and brain tumors. In that short …
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So lots of questions coming in make me realize I went pretty fast through the details of the current treatment plan. Here it is in a little more details: Radiation …
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Whew! Last night was a rough night. I honestly don’t know what I’d do without Brad. About two hours after the treatment the nausea set in. Then the headache from …
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The radiosurgery for my brain tumors ended up being super simple. Brad came with me and waited in the lobby for what he and the doctors reported was about 20 …
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The day before radiosurgery I went in to image the brain tumors and make a mask that would hold my head still during the procedure. Like the PET-CT scan, it …
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This means they can be treated with targeted therapies and immunotherapy. Genomic Alterations Identified: EZR-ROS1 fusion, EGFR amplification, FGFR1 amplification. These make the cancer cells susceptible to some targeted therapies. …
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Brad has been working full time to make our little apartment into a place of healing. Yesterday our bedroom furniture was delivered turning that room into a super cozy sanctuary. …