As expected because of my crizotinib resistance, blood cancer markers are still shooting up. Date CA 125 CA 19.19 Normal <= 35 <= 26 16 Oct 158 163 16 Nov …
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The prep for stereotactic radiosurgery is pretty comprehensive. It involves molding the mask, a CT scan while inside the mask, and an MRI to help map the tumors. Before all …
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Both my parallel streams to get my hot hands on lorlatinib seem to be paying off. In the US The Mayo oncologists filed a successful appeal with insurance and the …
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This has become Brad’s and my daily lunch during the week. It’s the perfect combo of delicious, wildly healthy, and easy to make. I’ll occasionally make a double batch of …
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A quick update on where I am on securing lorlatinib. I have a couple of parallel streams going but neither seems particularly promising. Just a reminder that I don’t qualify …
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This is perhaps my favorite variation on the original cruciferous salad. We eat it at least once a week. This salad is a winner not only because it packs so …
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The PET-CT results weren’t nearly as bad as expected given the dramatic rise in tumor markers in my last blood test. Overall, it looks fairly steady since the Jan 30 …
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Here’s where I am in the mad dash to find the next treatment for my quickly growing brain tumors: Plan A: Lorlatinib Trial in Boston The advantage here is free …
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Previously on this blog: On 31 Jan the Mayo oncologists told me that the original 2 brain tumors on which I’d had the gamma knife surgery were completely gone but …
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I’ve gotten some entertainment the past few months sifting through all the shady, pseudo-scientific treatments on the woo-woo side of complementary cancer care: reiki, neuro linguistic programming, emotional freedom technique, …
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It’s not really a surprise since I can see and feel my tumors grow, but my oncologist confirmed today that I’ve officially had progression while on crizotinib. I’ve developed resistance. …
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Beginning a few days after we returned to Hong Kong things have been going a touch downhill. My dizziness, nausea, and “spells” have significantly increased and energy is way down. …