Post-treatment brain radiation necrosis or “My oncologist tried to kill me”
Medical mistakes account for over 250,000 deaths each year.[1] I was almost one of them. Here’s how to make sure you’re not. If you’ve had or are considering any type…
Medical mistakes account for over 250,000 deaths each year.[1] I was almost one of them. Here’s how to make sure you’re not. If you’ve had or are considering any type…
This one is good. My lorlatinib instructions are to take 4 25mg tablets once per day. I thought that was weird since I know they make a 100mg tablet. What’s…
Today is my seventh day taking lorlatinib and my fourth day back at work. I could have returned to work earlier but Good Friday and Easter Monday are public holidays…
I spent three days on the road with less than a 12-hour turnaround in Austin and arrived home last night with a month’s worth of lorlatinib. Victory! I took my…
The prep for stereotactic radiosurgery is pretty comprehensive. It involves molding the mask, a CT scan while inside the mask, and an MRI to help map the tumors. Before all…
Here’s where I am in the mad dash to find the next treatment for my quickly growing brain tumors: Plan A: Lorlatinib Trial in Boston The advantage here is free…
It’s not really a surprise since I can see and feel my tumors grow, but my oncologist confirmed today that I’ve officially had progression while on crizotinib. I’ve developed resistance.…
I was pretty nervous about our whirlwind trip through the US. Seattle, Albuquerque, Austin, Minnesota, Baltimore, New York, and Austin again was a pretty punishing schedule given how I was…
I really can’t believe how lucky I am that my cancer has so many well-researched genetic mutations. With the number of treatments targeting these alterations, I sincerely believe that cancer…
I had a rough day yesterday throwing up both my Xalkori doses ($330 US down the toilet!!) and sleeping most of the day. I suspect it was a result of…
So lots of questions coming in make me realize I went pretty fast through the details of the current treatment plan. Here it is in a little more details: Radiation…
Whew! Last night was a rough night. I honestly don’t know what I’d do without Brad. About two hours after the treatment the nausea set in. Then the headache from…
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